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  Table of Contents  
LETTER TO THE EDITOR
Year : 2019  |  Volume : 56  |  Issue : 4  |  Page : 371-372
 

Linking of national health protection mission data to national cancer registry program of india for estimating cancer incidence


1 Department of Cancer Registry and Epidemiology, Population-based Cancer Registry, Kamrup, Assam, India
2 Department of Cancer Registry and Epidemiology, Dr. B Borooah Cancer Institute, Guwahati, Assam, India

Date of Web Publication11-Oct-2019

Correspondence Address:
Manigreeva Krishnatreya
Department of Cancer Registry and Epidemiology, Dr. B Borooah Cancer Institute, Guwahati, Assam
India
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Source of Support: None, Conflict of Interest: None


DOI: 10.4103/ijc.IJC_247_19

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How to cite this article:
Kalita M, Krishnatreya M. Linking of national health protection mission data to national cancer registry program of india for estimating cancer incidence. Indian J Cancer 2019;56:371-2

How to cite this URL:
Kalita M, Krishnatreya M. Linking of national health protection mission data to national cancer registry program of india for estimating cancer incidence. Indian J Cancer [serial online] 2019 [cited 2019 Nov 18];56:371-2. Available from: http://www.indianjcancer.com/text.asp?2019/56/4/0/267597




Planning cancer control without reliable data from cancer registries is prone to misplace its emphasis and will result in wastage of valuable resources. Information about the incidence of cancer is collected, analyzed, and disseminated by population-based cancer registries (PBCRs).[1] In India, like many other developing countries, data collection for PBCRs are active one, where the staff of PBCRs seek cancer patient's data actively from various sources like hospitals, diagnostic centers, and birth and death registration office. This is a tedious task, especially in populations where there is large number of hospitals and diagnostic centers to cover. PBCRs provide a platform to correlate the differences in cancer incidence and associations between supposed risk factors in a well-defined geographic region.[2] Efficient cancer registration has become a hallmark of a well-functioning advanced public health system.[3] PBCRs aim to identify as many as possible of the cases diagnosed among the residents of the registry area. The sources of registration involve private clinics, general practitioners, laboratories, coroners, hospices, health insurance systems, screening program, and central registers. Studies such as Global Burden of Disease (GBD), CONCORD, and GLOBOCAN evidently has shown that countries like India have the highest cancer mortality and low survival rates.[4],[5],[6],[7] The cost of cancer care treatment is one of the main factors influencing the mortality and survival rate in India.[8],[9]

Treatment of cancer is costly and, it is observed that owing to financial constraints most of cancer patients delay the start of treatment while arranging requisite funds, drop out during the treatment and many patients not start the treatment because of poor socio-economic conditions. Government of India's initiative like National Health Protection Mission or Ayushman Bharat (Healthy India) is an approach to reduce the economic burden of six commonly prevalent and high-cost disease groups, including cancer.[10] National Health Agency (NHA), an autonomous entity, was constituted for focused approach and effective implementation of Pradhan Mantri Jan Arogya Yojana (PM-JAY) or Ayushman Bharat. The NHA provides technical advice and operational inputs, as relevant, to states, districts, and sub-districts for PM-JAY including formulating standards, guidelines, and manuals to guide implementation, identification of capacity gaps and related trainings, development of health information, and Information Technology systems. The PM-JAY is touted as the world's largest health scheme. In India, 500 million beneficiaries are enrolled under the PM-JAY. Records of the beneficiaries of PM-JAY include their demographic or address information, diagnostic and treatment details, which are stored in electronic databases of implementation state health agency under National Health Authority. The data of patients registered in any empanelled hospital for cancer treatment can be used for passive source of cancer incidence for PBCRs in the network of National Cancer Registry Program (NCRP) under Indian Council of Medical Research. So far, 14,865 Private and Government hospitals are empanelled under Ayushman Bharat or National Health Protection Mission. Thus, linking National Health Protection Mission (NHPM) or NHA data to National Cancer Registry Program of India will help to better the estimates of cancer incidence and prevalence in India. Furthermore, the data from NHPM is readily available and can be shared on a real-time basis. From the databases, one can easily retrieve the demographic and medical records of beneficiaries who have received benefits under these schemes for their cancer treatment. The data can also be matched with the individual PBCR database to identify possible cancer patients that are left out of the cancer registry process or missed cases. This will further strengthen the data collection process for cancer registration in the country.

The gap of resources in the country for a nationwide representative cancer incidence and prevalence map will be surely narrowed down by linking health insurance scheme with cancer registration. The Ministry of Health and Family Welfare, Government of India should now make it statutory for NHA or NHPM to share data of cancer patients with the NCRP.

Financial support and sponsorship

Nil.

Conflicts of interest

There are no conflicts of interest.



 
  References Top

1.
Bray F, Znaor A, Cueva P, Korir A, Swaminathan R, Ullrich A, et al. Planning and Developing Population-Based Cancer Registration in Low-and Middle-Income Settings. Lyon, France: IARC (International Agency for Research on Cancer); 2014.  Back to cited text no. 1
    
2.
Steliarova-Foucher E. How can global incidence estimates support childhood cancer control?. Lancet Oncol 2019;20:460-1.  Back to cited text no. 2
    
3.
Parkin DM. The role of cancer registries in cancer control. Int J Clinic Oncol 2008;13:102-11.  Back to cited text no. 3
    
4.
India State-Level Disease Burden Initiative Cancer Collaborators. The burden of cancers and their variations across the states of India: The global burden of disease study 1990–2016. Lancet Oncol 2018;19:1289-306.  Back to cited text no. 4
    
5.
Allemani C, Matsuda T, Di Carlo V, Harewood R, Matz M, Nikšić M, et al. Global surveillance of trends in cancer survival 2000–14 (CONCORD-3): Analysis of individual records for 37 513 025 patients diagnosed with one of 18 cancers from 322 population-based registries in 71 countries. Lancet 2018;391:1023-75.  Back to cited text no. 5
    
6.
Bray F, Ferlay J, Soerjomataram I, Siegel RL, Torre LA, Jemal A. Global cancer statistics 2018: GLOBOCAN estimates of incidence and mortality worldwide for 36 cancers in 185 countries. CA Cancer J Clin 2018;68:394-424.  Back to cited text no. 6
    
7.
National Cancer Registry Programme. Three-Year Report of Population Based Cancer Registries: 2012–2014. Bangalore: Indian Council of Medical Research; 2016.  Back to cited text no. 7
    
8.
Pramesh CS, Badwe RA, Borthakur BB, Chandra M, Raj EH, Kannan T, et al. Delivery of affordable and equitable cancer care in India. Lancet Oncol 2014;15:e223-33.  Back to cited text no. 8
    
9.
Rajpal S, Kumar A, Joe W. Economic burden of cancer in India: Evidence from cross-sectional nationally representative household survey, 2014. PLoSOne 2018;13:e0193320.  Back to cited text no. 9
    
10.
Press Information Bureau, Government of India. Cabinet approves Ayushman Bharat-National Health Protection Mission. 2018. Available from: http://pib.nic.in/newsite/PrintRelease.aspx?relid=177816.[Last accessed on 2018 Mar 20].  Back to cited text no. 10
    




 

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