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Year : 2019  |  Volume : 56  |  Issue : 4  |  Page : 371--372

Linking of national health protection mission data to national cancer registry program of india for estimating cancer incidence

Manoj Kalita1, Manigreeva Krishnatreya2,  
1 Department of Cancer Registry and Epidemiology, Population-based Cancer Registry, Kamrup, Assam, India
2 Department of Cancer Registry and Epidemiology, Dr. B Borooah Cancer Institute, Guwahati, Assam, India

Correspondence Address:
Manigreeva Krishnatreya
Department of Cancer Registry and Epidemiology, Dr. B Borooah Cancer Institute, Guwahati, Assam

How to cite this article:
Kalita M, Krishnatreya M. Linking of national health protection mission data to national cancer registry program of india for estimating cancer incidence.Indian J Cancer 2019;56:371-372

How to cite this URL:
Kalita M, Krishnatreya M. Linking of national health protection mission data to national cancer registry program of india for estimating cancer incidence. Indian J Cancer [serial online] 2019 [cited 2020 Jul 9 ];56:371-372
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Planning cancer control without reliable data from cancer registries is prone to misplace its emphasis and will result in wastage of valuable resources. Information about the incidence of cancer is collected, analyzed, and disseminated by population-based cancer registries (PBCRs).[1] In India, like many other developing countries, data collection for PBCRs are active one, where the staff of PBCRs seek cancer patient's data actively from various sources like hospitals, diagnostic centers, and birth and death registration office. This is a tedious task, especially in populations where there is large number of hospitals and diagnostic centers to cover. PBCRs provide a platform to correlate the differences in cancer incidence and associations between supposed risk factors in a well-defined geographic region.[2] Efficient cancer registration has become a hallmark of a well-functioning advanced public health system.[3] PBCRs aim to identify as many as possible of the cases diagnosed among the residents of the registry area. The sources of registration involve private clinics, general practitioners, laboratories, coroners, hospices, health insurance systems, screening program, and central registers. Studies such as Global Burden of Disease (GBD), CONCORD, and GLOBOCAN evidently has shown that countries like India have the highest cancer mortality and low survival rates.[4],[5],[6],[7] The cost of cancer care treatment is one of the main factors influencing the mortality and survival rate in India.[8],[9]

Treatment of cancer is costly and, it is observed that owing to financial constraints most of cancer patients delay the start of treatment while arranging requisite funds, drop out during the treatment and many patients not start the treatment because of poor socio-economic conditions. Government of India's initiative like National Health Protection Mission or Ayushman Bharat (Healthy India) is an approach to reduce the economic burden of six commonly prevalent and high-cost disease groups, including cancer.[10] National Health Agency (NHA), an autonomous entity, was constituted for focused approach and effective implementation of Pradhan Mantri Jan Arogya Yojana (PM-JAY) or Ayushman Bharat. The NHA provides technical advice and operational inputs, as relevant, to states, districts, and sub-districts for PM-JAY including formulating standards, guidelines, and manuals to guide implementation, identification of capacity gaps and related trainings, development of health information, and Information Technology systems. The PM-JAY is touted as the world's largest health scheme. In India, 500 million beneficiaries are enrolled under the PM-JAY. Records of the beneficiaries of PM-JAY include their demographic or address information, diagnostic and treatment details, which are stored in electronic databases of implementation state health agency under National Health Authority. The data of patients registered in any empanelled hospital for cancer treatment can be used for passive source of cancer incidence for PBCRs in the network of National Cancer Registry Program (NCRP) under Indian Council of Medical Research. So far, 14,865 Private and Government hospitals are empanelled under Ayushman Bharat or National Health Protection Mission. Thus, linking National Health Protection Mission (NHPM) or NHA data to National Cancer Registry Program of India will help to better the estimates of cancer incidence and prevalence in India. Furthermore, the data from NHPM is readily available and can be shared on a real-time basis. From the databases, one can easily retrieve the demographic and medical records of beneficiaries who have received benefits under these schemes for their cancer treatment. The data can also be matched with the individual PBCR database to identify possible cancer patients that are left out of the cancer registry process or missed cases. This will further strengthen the data collection process for cancer registration in the country.

The gap of resources in the country for a nationwide representative cancer incidence and prevalence map will be surely narrowed down by linking health insurance scheme with cancer registration. The Ministry of Health and Family Welfare, Government of India should now make it statutory for NHA or NHPM to share data of cancer patients with the NCRP.

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Conflicts of interest

There are no conflicts of interest.


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